©2018 by Acrodysostosis Support and Research  

Jordan's Journey

Updated: Oct 9, 2018



Hi, I'm Jordan (@callmejords) and I am 18.


I was diagnosed with Acrodysostosis type 1 with related pseudohypoparathyroidism and many other complications in November 2017. This was after lots of genetic testing, as they thought I had albrights hereditary osteodystrophy.


Having a skeletal dysplasia means I'm only 4ft6 with toddler sized hands and 5-6 year old's sized feet.

However, I have learnt to love being unique and my aim is to raise awareness and help as many people as I can who are going through something similar, as it can be so isolating and confusing.

If anyone has any queries or knows anyone with acro or similar please do not hesitate to DM us.

- Jordan ✨