©2018 by Acrodysostosis Support and Research  

Jordan's Journey

June 14, 2018

Hi, I'm Jordan (@callmejords) and I am 18. I was diagnosed with Acrodysostosis type 1 with related pseudohypoparathyroidism and many other complications in November 2017 after lots of genetic testing, as they thought I had albrights hereditary osteodystrophy. Having a skeletal dysplasia means I'm only 4ft6 with toddler sized hands and 5-6 year old sized feet.


However, I have learnt to love being unique and my aim is to raise awareness and help as many people as I can who are going through similar as it can be so isolating and confusing.

 

If anyone has any queries or knows anyone with acro or similar please do not hesitate to DM us.

 

- Jordan ✨

 

 

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