©2018 by Acrodysostosis Support and Research  

October 8, 2018

Hi, my name is Jillian and I have Acrodysostosis type 1.

Some health issues that I have with it are short height, small hands and feet, liver disease, learning disability, thyroid problems, a

nd my metabolism not being able to work properly because of hormone problems.

My...

June 14, 2018

Hi, I'm Jordan (@callmejords) and I am 18. I was diagnosed with Acrodysostosis type 1 with related pseudohypoparathyroidism and many other complications in November 2017 after lots of genetic testing, as they thought I had albrights hereditary osteodystrophy. Having a...

When we were told our young daughter, Frankie may have an as yet unknown genetic disease, we felt our entire world collapse on that day. The thought of anything wrong with our beloved and most precious baby was incomprehensible. Several weeks later we received the new...

May 10, 2018

This is your blog post. Blogs are a great way to connect with your audience and keep them coming back. They can also be a great way to position yourself as an authority in your field. To edit your content, simply click here to open the Blog Manager. From the Blog Manag...

May 10, 2018

This is your blog post. Blogs are a great way to connect with your audience and keep them coming back. They can also be a great way to position yourself as an authority in your field. To edit your content, simply click here to open the Blog Manager. From the Blog Manag...

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Jillian's story

October 8, 2018

Jordan's Journey

June 14, 2018

Frankie's Story

May 10, 2018

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